Enhancing haemophilia care through registries

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You have free access to this contentEnhancing haemophilia care through registriesG. Dolan1, M. Makris2, P. H. B. Bolton-Maggs3 andJ. A. Rowell4,*Article first published online: 25 APR 2014

DOI: 10.1111/hae.12406

© 2014 John Wiley & Sons Ltd

Issue

HaemophiliaSpecial Issue: State of the Art: WFH 2014 World Congress

Volume 20, Issue Supplement s4, pages 121–129, May 2014

Additional Information

How to CiteDolan, G., Makris, M., Bolton-Maggs, P. H. B. and Rowell, J. A. (2014), Enhancing haemophilia care through registries. Haemophilia, 20: 121–129. doi: 10.1111/hae.12406

Author Information1

Nottingham University Hospitals, Nottingham, UK

2

Department of Cardiovascular Science, University of Sheffield and Sheffield Haemophilia and Thrombosis Centre, Sheffield, UK

3

Serious Hazards of Transfusion Office, Manchester Blood Centre, Manchester, UK

4

Haemophilia Centre, Royal Brisbane and Women's Hospital, Brisbane, Australia

* Correspondence: J.A Rowell, Haemophilia Centre, Royal Brisbane and Womens Hospital, Butterfield St., Herston, Brisbane, 4029, Australia.
Tel.: +61 7 36468067; fax: +61 7 36461392;
e-mail: John_Rowell@health.qld.gov.au

Publication HistoryIssue published online: 25 APR 2014Article first published online: 25 APR 2014Manuscript Accepted: 24 FEB 2014 SEARCH Search Scope All contentPublication titlesIn this journalIn this issue Search String Advanced >Saved Searches > SEARCH BY CITATION Volume: Issue: Page: ARTICLE TOOLSGet PDF (774K)Save to My ProfileE-mail Link to this ArticleExport Citation for this ArticleGet Citation AlertsRequest Permissions AbstractArticleReferencesCited By View Full Article (HTML) Enhanced Article (HTML) Get PDF (774K) Keywords:adverse event;haemophilia;registry;treatmentSummary

Clinical registries or databases have an increasing role in the management of inherited bleeding disorders. Initially, research-based registries provided valuable data and now national databases are increasingly being developed with multiple stakeholders, including persons with haemophilia (PWH) and payers, to enable improvements and efficiencies in care. Registries are extending to international collaborations to collect adverse event data and comparisons of national approaches to the management of haemophilia to improve the availability of product to PWH.

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