A pilot randomized control trial to evaluate the feasibility of an Internet‐based self‐management and transitional care program for youth with haemophilia

A pilot randomized control trial to evaluate the feasibility of an Internet-based self-management and transitional care program for youth with haemophilia - Breakey - 2014 - Haemophilia - Wiley Online Library Skip to Main Content Log in / Register Log In E-Mail Address Password Forgotten Password?

Remember Me RegisterInstitutional Login Home > Hematology > Hematology > Haemophilia > Vol 20 Issue 6 > Abstract JOURNAL TOOLS Get New Content Alerts Get RSS feed Save to My Profile Get Sample Copy Recommend to Your Librarian JOURNAL MENUJournal HomeFIND ISSUESCurrent IssueAll Issues FIND ARTICLES Early ViewMost Accessed GET ACCESS Subscribe / Renew FOR CONTRIBUTORS OnlineOpenAuthor GuidelinesSubmit an Article ABOUT THIS JOURNAL Society InformationNewsOverviewEditorial BoardPermissionsAdvertiseContact SPECIAL FEATURES Christine Lee Haemophilia Journal AwardVisit BloodMed.comWiley Job NetworkNew Books in Hematology & TransfusionWFH 50 Year Commemorative Virtual IssueSearch Engine Optimization: For AuthorsJobs Original Article

A pilot randomized control trial to evaluate the feasibility of an Internet-based self-management and transitional care program for youth with haemophiliaV. R. Breakey1,2,*, D. M. Ignas3, A. V. Warias2, M. White3, V. S. Blanchette3,4 andJ. N. Stinson3,5,6Article first published online: 14 OCT 2014

DOI: 10.1111/hae.12488

© 2014 John Wiley & Sons Ltd

Issue

HaemophiliaVolume 20, Issue 6, pages 784–793, November 2014

Additional Information

How to CiteBreakey, V. R., Ignas, D. M., Warias, A. V., White, M., Blanchette, V. S. and Stinson, J. N. (2014), A pilot randomized control trial to evaluate the feasibility of an Internet-based self-management and transitional care program for youth with haemophilia. Haemophilia, 20: 784–793. doi: 10.1111/hae.12488

Author Information1

Department of Pediatrics, McMaster Children's Hospital, Hamilton, ON, Canada

2

Faculty of Health Sciences, McMaster University, Hamilton, ON, Canada

3

Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, ON, Canada

4

Department of Pediatrics, The Hospital for Sick Children, Toronto, ON, Canada

5

Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, ON, Canada

6

Department of Anesthesia and Pain Medicine, The Hospital for Sick Children, Toronto, ON, Canada

* Correspondence: Vicky R. Breakey, MD, MEd, FRCPC, Pediatric Hematologist/Oncologist, Division of Pediatric Hematology/Oncology, McMaster Children's Hospital, HSC 3N27a – 1280 Main St. W, Hamilton, ON, Canada, L8S 4K1.
Tel.: 905 521 2100 (ext) 73080; fax: 905 521 1703;
e-mail: breakev@mcmaster.ca

Publication HistoryIssue published online: 30 OCT 2014Article first published online: 14 OCT 2014Manuscript Accepted: 2 JUN 2014Funded byBaxter BioscienceCanadian Hemophilia Society SEARCH Search Scope All contentPublication titlesIn this journalIn this issue Search String Advanced >Saved Searches > SEARCH BY CITATION Volume: Issue: Page: ARTICLE TOOLSGet PDF (167K)Save to My ProfileE-mail Link to this ArticleExport Citation for this ArticleGet Citation AlertsRequest Permissions AbstractArticleReferencesCited By View Full Article (HTML) Enhanced Article (HTML) Get PDF (167K) Keywords:adolescents;education;haemophilia;Internet;self-management;transitionSummary

Adolescents with haemophilia must assume responsibility for their health and management of their disease. An online self-management program was developed to support adolescents during this transition. To determine the feasibility of the program using a randomized control trial (RCT) design in terms of [1] accrual/attrition rates, [2] willingness to be randomized, [3] compliance with the program/outcome measures and [4] satisfaction. Adolescents, ages 13–18, were enrolled in a pilot RCT (NCT01477437) and randomized to either the intervention (8-week program with telephone coaching) or the control arm (no access to the website, weekly telephone call as attention-strategy). All participants completed pre/postoutcome measures. Twenty-nine teens participated (intervention n = 16, control n = 13). Participants in the intervention arm spent an average of 50 min on the website per week and completed the modules in an average of 14 weeks (SD = 4.9). Attrition was higher in the control group compared to the intervention group (54% vs. 25%). 17/18 (94%) who completed the program also completed the poststudy measures. Teens on the intervention arm showed significant improvement in disease-specific knowledge (P = 0.004), self-efficacy (P = 0.007) and transition preparedness (P = 0.046). There was a statistically significant improvement in knowledge in the intervention group when compared to the control group (P = 0.01). Overall, the teens found the website to be informative, comprehensive and easy to use and were satisfied with the program. This pilot RCT study suggests benefit to the program and indicates an RCT design to be feasible with minor adjustments to the protocol.

View Full Article (HTML) Enhanced Article (HTML) Get PDF (167K) More content like this Find more content: like this article Find more content written by:V. R. BreakeyD. M. IgnasA. V. WariasM. WhiteV. S. BlanchetteJ. N. StinsonAll Authors PublicationsBrowse by SubjectResources About UsHelpContact UsAgentsAdvertisersMediaPrivacyCookiesTerms & ConditionsSite Map Copyright © 1999-2014 John Wiley & Sons, Inc. All Rights Reserved. About WileyWiley.comWiley Job Network

View the original article here